Healthy Generations: Details
Symposium Agenda
8:00–8:30 AM
Registration & Continental Breakfast
8:30–9:00 AM
Opening Remarks
Lois B. Victor
Founder, Victor Center for Jewish Genetic Diseases
9:00–10:15 AM
Keynote Address
History and Effectiveness of Screening for Jewish Genetic Diseases
Lawrence R. Shapiro, MD, FACMG, FAAP
Director Emeritus, Regional Medical Genetics Center,
Westchester Medical Center
10:15–11:00 AM
Jewish Genetic Disease Screening: Professional Guidelines
Susan Gross, MD, FRCS(C), FACOG, FACMG
Director of the Division of Reproductive Genetics,
Department of Obstetrics & Gynecology and Women’s Health,
Albert Einstein College of Medicine
11:00–11:15 AM
Break
11:15 AM–12:15 PM
Applying Jewish Ethics and Values to Genetic Screening Decisions
Daniel Eisenberg, MD
Staff Radiologist, Albert Einstein Medical Center
Author and Speaker on Jewish Medical Ethics
Rabbi Jeffrey Arnowitz
President, Tri-County Board of Rabbis
Associate Rabbi, conservative Congregation Beth El, Cherry Hill, New Jersey
12:15–1:15 PM
Luncheon Keynote
Public Health Policy
Senator Arlen Specter (R-PA) - Invited
1:15–2:00 PM
Advocacy and Community Empowerment: Screening in Your Community
Adele Schneider, MD
Director, Clinical Genetics Program, Albert Einstein Medical Center
Director, Victor Center for Jewish Genetic Diseases
Dale Mintz, MPA, CHES
Founding National Director of Women’s Health and Advocacy,
Hadassah, The Women’s Zionist Organization of America
2:00–3:15 PM
Coping with Jewish Genetic Disease in the Family
Facilitator: Paula Goldstein, LCSW, Jewish Family & Children’s Service of Greater Philadelphia
Panelists:
Stacey J. Feuer
Stacey Feuer was diagnosed with Gaucher Disease in 1997 and has been living successfully with the disease for more than nine years. She is an Education Consultant and Patient Advocate. She works as the Assistant Director of Intercultural Affairs at Penn State Abington.
Richard Gladstein
Richard Gladstein is a two-time Academy Award nominated film producer for his productions of Finding Neverland and The Cider House Rules. His other film credits include Mr. Magorium’s Wonder Emporium, The Nanny Diaries, The Bourne Identity, Reservoir Dogs and Pulp Fiction. Richard and his wife Lauri are the founders of the Bloom’s Syndrome Foundation, which is dedicated to funding research aimed at the development of a therapy and curefor Bloom’s Syndrome, which affects their son Milo.
Stan Michelman
Stan Michelman lost his grandson, Evan Ungerleider, to Tay-Sachs Disease. He is a board member of the Evan Lee Ungerleider Foundation, Co-President of the New York Chapter of Tay-Sachs and Allied Diseases Association, Board member of the National Tay-Sachs and Allied Diseases Association, Chairman of the Genetic Disease Foundation and Co-President of the Jewish Genetic Disease Consortium.
Emily Sonenshein
A native of the Philadelphia area, Emily was raised in the suburbs with her brother, who has Familial Dysautonomia. She is currently pursuing a doctorate in clinical psychology at Widener University’s Institute for Graduate Clinical Psychology. For her doctoral dissertation, she will be conducting a research study that examines the psychosocial impact of Familial Dysautonomia on the family.
3:15–3:30 PM
Evaluation And Closing Remarks
This page last updated on 2008-04-04 15:11:16